Sunday, June 15, 2008

tinnitus, tinnitus, tinnitus

i'd taken a little break from posting.

recently, i've gotten some good comments- but it was getting a little depressing, since in the beginning i only got comments from spamers trying to sneak in ads for tinnitus miracle cures (NOT).

also, surprisingly, i got some "hate mail."

just 1 or 2 letters, but it was disturbing.

from people who thought i should be "more positive."

i wrote long letters back to these people, but they never responded.

i tried to explain that Tinnitus differs qualitatively and quantitatively, in sufferers.

for a few years, i had very mild T. i was depressed, but learned to live with the condition.

due to a later incident with profound noise trauma, my tinnitus got terribly worse.

it's outrageously loud, and makes it hard to concentrate.

anyway-

point is, most doctors i've seen have made me WORSE -- NOT BETTER -- and most of the scientific studies and research is bizarrely incomplete, sparse and illogical.

i understand it's a difficult health problem to treat, but i've talked with med researchers, and their thinking on T is whimsical.

for example, my tolerance for acoustic trauma has been lowered, due to my last noise exposure.

a book falling off a shelf, someone knocking on a door -- that makes my tinnitus WORSE. sometimes permanently.

i am ignored when i mentioned this to "specialists."

when i ask specifically about it, they say, "there's no evidence of that."

which is TRUE.

the doctors ignore their patients who complain about it... and it's NEVER BEEN STUDIED.

(believe it or not, there are doctors who don't believe this condition exists, or that's is solely psychological.)

* so

the guy who has a FAINT, MILD, TRANSIENT hissing in his ears, can say "you've got to tough it out, it's not so bad."

but some tinnitus sufferers are 1 on the T scale -- and some are 9.5

understand?

it's like telling someone with a knife wound, "hey: i had pain once. i stubbed a toe. it's not so bad. get over it."

which is incredibly insensitive, stupid and cruel.

(and, only adds to the isolation of tinnitus sufferers.)

* anyway

i just got a few good REAL emails and comments.

one was from STEPHEN LUCAS, who has a very good tinnitus blog, i highly recommend:

http://tinnitus123.blogspot.com/

STEPHEN LUCAS TINNITUS BLOG is the link

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